Assignment Content
The purposes of this assignment are for you to:
Articulate your understanding of what patient registries are, how they function, and how they can used to improve outcomes.
Identify a national, state, or local patient registry that your patient registry will interact with. These registries have already established the data that needs to be collected and standards surrounding that data.
Review the Cancer Registration & Surveillance Modules page on the National Institutes of Health website.
Research patient registries online. Consider researching registries that support public health, such as immunization registries or a disease registry.
Consider these questions during your research:
What is the patient registry’s purpose?
How can this data be used?
Select a patient registry to use for this entire course, such as the COVID-19 Vaccine Summary page on the Virginia Department of Health website. Note: In Week 4, you will need actual data to enter into your selected patient registry, so choose a patient registry that provides data for a minimum of 50 patients.
Choose 1 of the following options as the medium for this assignment’s deliverable:
525- to 700-word paper
Explain the following:
What is a patient registry?
What types of patient registries are there?
How do patient registries support population health?
How do patients become eligible for a patient registry?
How are patients identified in the patient registry?
How are updates maintained?
How is data stored?
How can patients benefit from registering?
Differentiate between the following types of patient registry designs:
Patient self-reported
Professional reported
Combination of patient self-report and professional report
Identify the patient registry that you will develop during this course and address the following for your selected registry:
What is the target population?
What is its purpose?
How does it support population health?
What national, state, or local registry does it report to?
What data will be collected?
How will that data be used?
Cite at least 3 professional references to support your work.
Format your assignment based on the following specifications for the medium you selected:
Format a paper according to APA guidelines.
If you selected a different medium, format citations according to APA guidelines.
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